Still Here

Well, we are still here at OU Children's.  At this time, Lucy is getting ready to start a little bit of formula over the pump.  That means a small amount of formula (about 1.5oz) will go into her belly over thirty minutes.  It's not much, but it's a start! We will see how she tolerates it, and that will determine the next step.  We hope she will do well with this feeding, and that we can get home soon!

Lucy's still having trouble with pain.  She's been screaming terribly and pulling her hair out this morning.  It's so hard to watch.  I so wish that Lucy could tell us what is wrong; is it her head?  her ears?  her belly?  No one knows, and so we guess and we give her pain meds.  She's had morphine and lortab already this morning, and finally she has fallen asleep.

Also, Lucy's ears still aren't looking great.  You can imagine our frustration as we JUST had new tubes placed in December!  I'm not sure why she has so much trouble with those sweet ears, but they sure do hurt her.  We will be doing our third dose of IV antibiotics for her ears this afternoon.  Bless her heart.  Will we always have to be admitted for ear infections?  Will she always get them?  Will she need new tubes?  Will they ever work correctly?  

It's amazing how sick Lucy's ears can make her.  As you've read, she requires the heavy-duty meds through the IV.  She requires the heavy-duty pain meds through the IV.  She seizes more when she's sick, and every sickness causes a host of problems.  What started off as strep last Friday has us here in the hospital this week, and has turned into full-blown ear infections, possible stomach bug/GI issues, dehydration, seizures, inability to take one of her NKH meds, etc.  This, My Friends, is why special-needs mommas absolutely hate "sick season".  

Thank you so much for praying for us.  Lucy and I have both been resting really well overnight at the hospital and our nurses and doctors are taking excellent care of us.  We wouldn't want to be anywhere else in Oklahoma!  We just need our Little Princess to be healed and for her infections to clear up.  Thank you for surrounding us with love and prayer!

Ryan