You are invited to join in commemorating Ellie Kate's 18th birthday! In her honor, we are raising funds for "Ellie Kate's Wish", which financially supports our NKH Family all around the world. Your donations will assist with practical, medical and immediate needs for both NKH individuals and their families.
"Ellie Kate's Wish" was established by NKH Crusaders in her memory with a desire to bless, serve and provide for families experiencing the same hardships often caused by NKH. Each Holiday Season, NKH families are encouraged to submit an application for "Ellie Kate's Wish", expressing their specific needs. It is our goal to bless and provide for the families with the most needs; this is especially true as we celebrate what would be EK's 18th birthday. Although there are only 500 living with this disease, our NKH families stretch from Israel to the U.K., from Puerto Rico to France and of course, right here in the U.S.
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Ellie's Story:
Elizabeth Kathleen (Ellie Kate) McLaughlin was born December 4, 2005 to Ryan Elizabeth and Mike McLaughlin of Oklahoma City. Our Beloved Ellie Kate left this earth December 23, 2012 after living with Non-Ketotic Hyperglycinemia (or Glycine Encephalopathy), a rare and terminal genetic disorder. NKH caused our Sweet Girl to spend most of her life in the hospital.
Like most born with this disorder, Ellie Kate did not walk or talk and ate via feeding tube. She handled cerebral palsy, SVT, cortical visual impairment, severe epilepsy, and significant disabilities with beauty and grace. "EK" is survived by her parents and four siblings, one of whom also suffers from NKH. She loved church, school, friends, family, music, shopping, and dancing (especially to Taylor Swift and Miranda Lambert).
If Ellie Kate impacted your life, please consider donating to this worthy cause. If you are just learning of her story, I also encourage you to give. No sum is too small.
We are honored for you to join us in this endeavor as we celebrate our Precious Ellie Kate's life!
With Hope,
Ryan (Ellie Kate's momma)
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