Tomorrow is NKH Awareness Day! That's right, Friday, May 2nd is a day set aside to spread awareness for this disease which affects less than 500 people world-wide. Last year we celebrated NKH Awareness Day in the hospital, but this year - THIS YEAR, WE ARE HOME!! Wahoo!! Lucy is home, and we are excited to celebrate our big NKH Day out of the hospital.
We had such a great response last year from our friends and family. There was so much support in raising awareness for Non-Ketotic Hyperglycenemia or Glycine Encephaloopathy . Some of your support looked like this . . .
We are asking you again to spread the word on this disorder that has taken the life of so many, including Our Ellie Kate. You can do this everyday, but in particularly, spread the word tomorrow! Tell people about NKH. Tell people about Ellie Kate. Tell people about Lucy Belle. Tell the world and raise awareness!
Also, we ask that you mark yourself to spread awareness. Yep - mark yourself! Use your body to write special messages, like the ones seen above. Undoubtedly, people will see your NKH markings and will ask you about it. It will give you the perfect chance to tell the world about this disorder! Also, post your pics on Facebook, Twitter and Instagram! We want to see your NKH Love, so show it loud and proud!
Thank you for your prayers. Thank you too for supporting our girls, our family, and our extended NKH Family around the world.
For more information on NKH, please visit the following sites:
NKH Family Network, NKH Crusaders and Hope for NKH
With Hope,
Ryan
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