Lucy Belle

We are home!  Thank you so much for praying for Lucy Belle.  She is doing so much better, although she still isn't back to her full, happy self.  We've upped a few seizure meds and have added a new rescue med for her long seizure episodes.

There is no way we could get through these things without your love and support.  This was such a scary time for us and for Lucy.  Your encouragement has meant the world to us.  Your prayers have lifted us up more than you could know.  We truly just couldn't do this without YOU.  YOU are a huge part of our journey!

Lucy did start running a fever tonight, and if it gets too high, we have to go back to the hospital; you can imagine how much we DO NOT want to do that!!  Please pray for her fever to go away completely.  Also, please pray that she will be back to her self again.  We are so ready to see our Bubbly Little Girl rolling around the house!

On a lighter note . . . we are SO grateful for all that you did to show us love on NKH Awareness Day!  Here are just a few fun pics that you posted and sent to us on May 2nd:

Thank you, Friends.  We are truly blessed by you in so many ways.  

With Love,

Ryan