We found out yesterday that Ellie Kate has RSV. This is bad
because it is a fairly serious virus in newborns and infants (and that
elderly). We took her in at a good time because the doctors feel that she is
doing really well and responding positively to her treatment. She is breathing
above her ventilator consistently and should be off the ventilator either today
or tomorrow if I had to guess.
Ellie Kate having RSV is a good thing because we didn't want
her breathing problem to be a side-effect or a new symptom of her
genetic/metabolic disorder. NKH isn't accompanied by breathing problems so it
really concerned us and the doctors that she developed breathing issues.
She is doing well and looks much better this morning than
Friday. Being an asthmatic, I realized one of my biggest fears by watching her
struggle to get good air.
Ryan and Conner are doing quite well. It doesn't appear that
RSV is effecting them or me but we are doubling our vitamins, water intake,,
hand washing and clothes washing. We are also warning everyone that dares enter
the PICU that RSV is highly contagious and to enter at your own peril. But if
you have a fairly strong immune system then it presents itself like a strong
cold.
Thanks for the prayers, hugs, kind words and cards... we
appreciate all of them. And we promise to post some more pictures soon after
she is once again extubated.
-MFM
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