EK has been admitted once again to Baptist PICU. They have
put her back on the ventilator, but are allowing her to do most of the work
breathing. Since she was having labored breathing this morning they wanted to
be able to monitor it and stabilize it, thus back on the vent. She isn't being
drugged, or in a semi-coma like she was before. She does have a central line
once again and is now being fed through a GI tube. But, they are letting her
have breast milk. We aren't sure if this is a virus or a product of her NKH
(metabolic disorder). They are doing some tests (of course!), and we will
hopefully know more soon. Problem is, she is once again being admitted on a
weekend, and not much goes on in hospitals during the weekends!
God is still faithful. We continue to believe He is doing
great things in and through baby Ellie - we just can't see the big picture at
this time, but our trust is in Him. Please just pray that we can figure all of
this out. We long for normalcy!
We love you all and will give another update when possible.
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