"You are my witnesses, and my servant whom I have
chosen, in order that you may know and believe Me, and understand that I am He.
Before me there was no God formed, and there will be none after Me. I, even I
am the the Lord; and there is no Savior besides Me . . . there is none who can
deliver out of My hand; I act and who can reverse it? . . . Behold, I will do
something new, NOW it will spring forth; Will you not be aware of it? I will
even make a roadway in the wilderness and rivers in the desert. The people I
formed for Myself will declare my praise."
Isaiah 43:10-11, 13, 19
It is with a humble heart that I write to you tonight from
our home in OKC. That's right - we are home! Ellie Kate was released from the
hospital on Sunday evening, and we arrived home late last night.
The verses you read above tell the story of this journey for
us. God formed little Ellie with a divine purpose. He chose her and He chose us
to go through this so that we would know the power of His might. He still works
in wondrous and mysterious ways! He is alive. He has done something new in our
lives and in the life of our daughter. We are aware of it and we give God all
of the glory! What seemed impossible at one time, has now become reality and
God has done it all - like making rivers in the desert.
Ellie Kate is doing remarkably well! As you know, she has
been diagnosed with a very rare metabolic disorder called Non-Ketotic
Hyperglycinemia. This is a very serious thing, but we are encouraged! Our
daughter is moving, acting and sounding like a normal five week old - something
that at one time we thought was going to be impossible! For the time being (and
into the seeable future) Ellie will be visiting doctors often, including her pediatrician,
Metabolic Geneticist and Pediatric Neurologist. She will probably also see an
Occupational Therapist to make sure she stays on track developmentally after
all of the trauma that has occurred. She is on a tight regiment of various
medications. But, the doctors and specialists are encouraged at her
performance, and at how much she has changed in her short little life. We know
that is because God has touched her!
We want to thank you again for all of your prayers, your
gifts and your love. This journey is by no means over, and we appreciate your
support in the future as well as we continue to learn more through these trials
about our Lord Jesus. Don't worry - we will keep this website and keep you up
to date. We have a long road ahead of us! One thing we have learned is the
importance of the Kingdom of God here on earth - that means YOU and we need you
in our lives.
So many of you ask what you can do for us. Right now the
most important thing is just knowing that you all are here for us in various
ways. Please, keep that up! Also, there will be an opportunity for you to come
and celebrate with us at a dinner which is being put on by Oklahoma City
University, where I work. The OCU family is amazing, and they are hosting an
all-you-can-eat spaghetti dinner for us on Tuesday, January 31st. The dinner will
be located in the cafeteria on the OCU campus, which is located at 2501 N.
Blackwelder in OKC. The event is come and go from 5-7pm, and the cost is $5 -
all proceeds will go to a fund for Ellie Kate's medical expenses. This is such
a kind gesture, and we are truly humbled. Mike and I are considering this a
"celebration dinner", as I mentioned before and we would love for you
to come and celebrate with us. For more information, you can contact our dear
friend Saundra Ptak at 208-5050, or by email at sptak@okcu.edu.
We love you all. Please continue to pray for COMPLETE
healing and restoration - we know that God is able.
He is faithful!
Ryan
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