Hello and to the point…

The Seizures: As of today, the seizures have (for lack of a better descriptive word) gone down, to the point that we don’t think she has had any the past few days.  My guess is that they will simply come in waves.  Several for several days… and then we won’t see any for several days.   We know that the medicine that they have her on now will likely not stop or control every seizure, just a majority of them.  The docs are still looking into all the anti-seizure medicine options.

GI situation:  Yesterday they performed another abdominal X-Ray and they can’t see any evidence of an obstruction.  I guess this is “neutral” news for the very simple fact that she doesn’t have an obstruction.  But it does not offer any clues as to what the underlying cause of the GI complications.

EKM is still having problems with her distended stomach so they have stopped her feeds.  Her stomach went down but as of yesterday it became distended again, after a few days without milk.  So this is yet another troubling turn of events.

There are only speculations as to why her stomach is starting to behave like her intestines and not push air through her GI Tract.  We know from the biopsy that it is not Hershprungs Disease.  

Miscellaneous updates: We aren’t sure when our house will be put back together.  We have been in constant contact with insurance adjusters, agents and repairmen.  We aren’t even sure to the exact extent of the damage.  Yesterday we learned that more of our kitchen is likely damaged than expected.  So maybe we’ll get some new cabinets and such.  At least that could be a positive.

We aren’t sure exactly when we will be leaving the hospital either.  We are going to speak with some of the doctors about home care… what to look for, what to avoid, what to expect, etc.

The following quoted material has been taken from a message sent by one of Ryan’s sorority about a March of Dime’s Walk:

"I am sure you have all heard about Ellie Kate.  Our thoughts and prayers are with her family. As a way of helping we are going to be participating in the March of Dimes on May 6, 2006 and will be walking in her honor.
We also have baby banks located all over campus to help raise money. If you would like to help out please send donations to the Alpha Gamma Delta house or call Sheena.  …  We appreciate everything you do and we hope to see you soon!"

Everyone is welcomed to join us as we walk next Saturday in honor of Ellie Kate.  The walk begins downtown at the Myriad Gardens.  Registration is at 8:30 and the walk begins around 9:30am.  Our family will be there and we look forward to seeing anyone who would like to attend.  For more specific details and for t-shirt info, contact the ladies above.

Lastly, thank you for your unwavering support and prayers.  We are blessed to have such friends and family that love us and care for us.  I think everyone desires a pat on the back.  You know you deserve it… come on, start patting yourself.

 - MFM

Though He slay me, yet will I trust Him.  Job 13:15