The last 2-3 days have been very difficult. Elizabeth has experienced some seizures. They are partial or focal seizures... lasting anywhere from 5-20 seconds. That could be a reaction to some of the new medicines she is on or an advancing of her condition. It's too difficult to tell right now.
The other difficult news has been that her veins are growing tired faster and faster from the many IV sticks. So much so that she had to undergo surgery today to place a catheter style main-line in her chest. This will allow her once again resume IV feedings and IV medicine.
The bigger news of all this is that we are trying to get her transferred to OU Children's Hospital. Her specialists are there and being a college, they naturally have more specialists in all the other areas as well. The reason why we haven't been there the entire time is, bed space. OU Children's bed space almost always fills up faster than Baptist so we always get diverted to Baptist.
We'll keep you all updated as soon as something changes.
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