A lot has happened since the past update. The cliff notes version is that Ellie Kate is and will be undergoing some GastroIntestinal (GI) testing. They performed a lower GI tonight that the GI specialist will look at in the morning. The preliminary analysis of it is that she does not have any blockage in her large intestine. Ellie Kate should undergo an upper GI tomorrow at some point.
The bad news is that she had her first seizure this morning. We have her in the PICU (our home away from home)... she has not had any since the morning, but she has resummed her myclonic jerks. They have lessened in intensity and frequency as the sun moved along the sky. Though she is in the PICU she is stable. She is not on the ventilator or any other life sustaining device.
Tomorrow we should know more than we know right now so we will update this site as soon as we can. Thank you for your prayers and offering of support. Once we stop going 100 mph we will return all the calls and make time for our friends.
- MFM
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