What we've learned up to this point is that something is wrong with Ellie Kate's small intestine. The word that is used to describe what is wrong is "ileus"... meaning intestinal obstruction. We don't know if this is an intermittent obstruction, partial obstruction or (as one doctor has hypothesized) a showing of poor muscle tone related to NKH. The last possibility is something that I dispute, based on no literature that I've found to support it but he is a doctor and might be smarter than me.... might.
Anyway, the treatment regime is consisting of TPN, reglan, and 1-2 ozs of milk every 3 hours. We'll try this approach to see if it (A) stimulates her small intestine and (B) the reglan helps the ileus. If this doesn't work we will probably transport EKM to another facility... possibly back to Houston.
Pray that Ellie Kate's small intestine will start to clear up and function properly again. We'll keep you updated once we receive updates.
- MFM
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