April 21, 2006

Dearest Friends and Prayer Partners,

Thank you for continuously lifting us up in prayer!  We are still watching and waiting - taking it a day at a time here at Children's Hospital.  Everyone has been great (especially our nurses:)), and the teams are working hard to find a solution to EKM's problems.

As of now, she is still having a few seizures.  Her heart rate has been inconsistent, and there are times when it stays quite low.  But, the doctors are not too alarmed.  She is on all the proper medication for both of these things - the rest is just in God's hands.

X-Rays yesterday and today show a "possible obstruction" once again, and it is just baffling the doctors.  They will be working on that today trying to figure out what to do next.  Meanwhile, EKM is being fed breast milk via an NG tube in her nose, and is recieving lots of nutrition through her TPN (temporary feeding she recieves through her IV).  She continues to slowly gain weight, which is great considering all that she has been through!

Below is an excerpt from an email on behalf of Ellie Kate.  The undergraduates in my sorority house (Alpha Gamma Delta at UCO) are putting some incredible things together for our family.  They will be walking for EKM in May during the March of Dimes.  We are completely overwhelmed by this precious gesture!  I am so proud to be part of this amazing group of young women.  Others are welcome to participate and walk as well!  Just contact the girls listed below in the email:


"Hello Ladies,
    I am sure you have all heard about Ellie Kate. Our thoughts and prayers are with her family. As a way of helping we are going to be participating in the March of Dimes on May 6, 2006 and will be walking in her honor.  Jackson our Purchasing Coordinator is having t-shirts made for the girls to walk in that are blue and say " I'm running for Ellie Kate" , so if you are interested please contact Jackson.
 We also have baby banks located all over campus to help raise money. If you would like to help out please send donations to the Alpha Gamma Delta house or call Sheena. Lastly, April 25, 2006 Alpha Gams will be waitressing at Pizza Hut Italian bistro on Memorial and May during lunch and dinner to also help with awareness. Please come out and support us! We appreciate everything you do and we hope to see you soon!"

Much love to everyone.  We will update again as things develop!

Ryan