Ellie Kate saw her geneticist on Monday. The best way to describe this visit was encouraging and up-beat. Our geneticist was very pleased with Ellie Kate's development... her neck strength, her hand-eye coordination, the fact that she has rolled over, etc. Our geneticist even said that she is doing quite well and doing more things than any child with this disorder that she can think of. We will begin to adjust her medicine levels since she is growing so that will definitely be interesting.
We see the cardiologist on Thursday (March 9). We expect this visit to go well and to have the cardiologist confirm what we suspect, that is that Ellie Kate's heart is fine and no need to worry about it.
We know that things can change and that Ellie is still only 3 months old but it is extremely comforting to know that at the very least Ellie Kate is stronger and leading as close to normal a life as we could have expected.
If you could, continue to pray for Ellie Kate's development... we'll know more about her condition and this disorders effect on her body once she reaches or misses her milestones (crawling, sitting up walking, etc.)
Also, pray for Ryan and I to continue to experience God's love and peace throughout this ordeal. At times we feel as if we have reached our limit. We have faith that God is all around us and blessing us with this girl. Pray that we see every day with her as a blessing.
We love you and really appreciate all of your prayers and support.
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