Last Thursday, Ellie Kate saw her cardiologist. It was a great visit - we really enjoy the doctor, which is a blessing. The doctor believes Ellie's heart is fine, but we will continue to watch and keep her on her heart meds until she is a year old - just taking precautionary measures.
Next Tuesday we will be visiting the neurologist once again for a check up and evaluating her meds. The neurologist is great too! In fact, every one of the doctors we work with are amazing. They call us and email us almost daily. It is a blessing to be so heavily watched by such an incredible team of professionals!
It seems that we have constantly been under fire for the last several months. This week we found out that Conner busted his ear drums because of a severe sinus infection (not to worry - this isn't too uncommon and should clear up on it's own). Ellie Kate too is still suffering from a sinus infection. Both kids are now on stronger antibiotics for their infections.
Also, Ellie Kate has been pretty much inconsolable for the last two weeks or so. She is incredibly irritable, and in visible pain. This, of course, is heartbreaking. And, it is stressful to have a baby who literally cries all of the time unless she is eating. She isn't sleeping very much either. Mike, Conner and I feel very depleted.
Please pray that we will figure out what is going on. Is it her meds causing her pain and discomfort? Is she teething? Is it the sinus infection? Is this part of NKH? Is it a combo of all of the above? These questions are constantly on our minds. Pray that God will give the doctors wisdom as we try to comfort baby Ellie Kate.
We love you all and will post another update soon!
Ryan
No comments:
Post a Comment