Friday, February 3, 2006

February 3, 2006

First of all, on behalf of Ryan, let me thank each and everyone of you that became apart of the spaghetti dinner.  It was more fun than I could have imagined.  It was a blessing to see so many people.

Ellie Kate will get evaluated by a geneticist and neurologist on Monday.  From that evaluation and the subsequent evaluations by those doctors, we will begin to develop a treatment plan for Ellie Kate.  Her medication will be adjusted, our doctors visits will be determined and probably what types of procedures and tests will be needed.

When we brought Ellie Kate home from Houston, we were told to watch for some things that were associated with her disorder.  We are pleased to report that we have not seen any of the red-flags.  No seizures, no major complications (outside of RSV, which was unrelated) and no major-developmental issues.  We know that we are not out of the woods yet but we are encouraged as each day passes.

Ellie weighs over 9 pounds and is beginning to hold her head up on her own.  And I forgot to mention that she is extremely feisty.

She has me 100% wrapped around her finger.

-MFM

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