Showing posts with label NKH Families. Show all posts
Showing posts with label NKH Families. Show all posts

Tuesday, December 13, 2016

"For Unto Us a Child is Born"

WARNING: This Post is one of my longest one's to date.  However, I PROMISE that it is rich, meaningful and has some VERY exciting surprises along the way!  So, read it all at once, read it in small bits, or only read the parts that interest you (I've labeled each section for easier reading).  Also, a big "thank you" to everyone for their patience and understanding as I've been without a working phone and without a working computer at home - yippee (sarcasm)!  

For those reading via phone or tablet - Blogger has seen fit to change the format of this post with extra highlights and confusing paragraph changes; for that, I sincerely apologize.  Hopefully all will be able to read this in it's entirety and hopefully, it will all make some sort of sense (despite the grammatical "differences"). In all seriousness and with all of my heart, I wish you the Merriest of Christmases!

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"For Onto Us a Child is Born"

Miss Ellie Kate starring as an Angel 
in the Church Christmas Program 2009


Christmas Songs. They fill our homes, our cars, our churches, and even our shopping malls. I remember one Christmas Season, when Charlie Hall was our Worship Pastor at Bridgeway Church,  he brought to our attention something uniquely special about this season:  Christmas - it's the ONLY season, the only time on earth, where Christ's name is proudly proclaimed out in the public arena, within our communities, throughout the airwaves,  and seemingly everywhere you go. How incredible is it that Our Lord's Name is being sung and proclaimed, even by those who do not know Him?! Do you ever sit back and fully take in the words of these beloved Christmas Carols, understanding the truth coming through the lyrics and rhymes?

Take this popular one, a favorite for many:

Oh holy night! The stars are brightly shining
It is the night of our dear Savior's birth
Long lay the world in sin and error pining
Till He appeared and the soul felt it's worth
A thrill of hope the weary world rejoices
For yonder breaks a new and glorious morn . . . 

Fall On Your Knees!

Truly He taught us to love one another
His law is love and His gospel is peace
Chains shall He break for the slave is our brother
And in His name all oppression shall cease!
Sweet hymns of joy in grateful chorus raise we
Let all within us praise His holy name!


And one of my VERY favorites, which clearly shows the longing of Advent . . . one I can relate to, with mourning and yearning for My Savior to meet me - not only for Salvation, but for daily life, hope and peace . . . 

O come, O come, Emmanuel
And ransom captive Israel
That mourns in lonely exile here
Until the Son of God appears

Rejoice! Rejoice! Emmanuel
Shall come to thee, O Israel.




Advent - many of us celebrate it in our churches and with our families, but what does it truly mean?  The dictionary tells us that "advent" means "waiting or anticipating the arrival of something".  We celebrate Advent in the days leading up to the birth of our Lord Jesus Christ on Christmas Day. It's a holy remembrance of the history of Our People, as Christ-Followers.  It's the marked anticipation our forefathers once knew and so vividly tasted as they lived in a world without a Savior, without the Holy Spirit.  

Man was so sinful - lost and without hope.  Can you imagine - NO light, NO true peace, NO true hope?  They knew He was coming because the Father told them so and spoke to them for generations through the Prophets, as we see in the Bible.  They knew God the Father would bring a King - a King to set them FREE!  They no longer would be slaves or oppressed, as they had been for generation upon generation.


This short video from our church gives an excellent description
of Advent andThe Coming King

The Father fulfilled His promises with the birth of the Baby King. He delivered, quite literally, in fact.  Jesus was born miraculously, from the womb of a humble teenage girl and her partner who was also surrendered to the Father's Will.  Jesus wasn't born in a palace, but in a manger.  You know the story, of course.  It's just so easy to forget the reasoning of it all - Jesus was purposefully born to unknown, unimportant, lowly parents for a reason.  He was born in a lowly town, in a shed with filth and animals all around, without anything that would resemble royalty.  Jesus came to us in the lowliest of earthly forms because He is Us.  Jesus, the King of Heaven and Earth, lowered Himself and became the lowliest of men on that Christmas night. 


Let us not miss the meaning of Jesus's lowly earthly birth and the circumstances around it. 
It's in this spirit which I share what God has so dearly pressed on my heart this Christmas . . . 

  • Jesus was fully God and fully man
  • THE King, lowered Himself for me, willing to become human on my behalf
  • He left His heavenly kingdom and comforts to be a helpless baby in the arms of an imperfect mother and father, to grow in a broken world, just like the one I live in.
  • Jesus chose to live in an imperfect world with hurts - physical, emotional, mental and everything in between.  He chose that because of His great love for ME.
  • The Father fulfilled ALL of His promises in Christ Jesus!  Even though He came in a different way, and even looked differently, acted and lead  differently than what they thought He would - God's plan was BETTER.  His way was PERFECT, even when it didn't seem that way.  Even when their Long-Awaited, Promised, King and Salvation came in the form of a lowly, poor baby boy without a crown - God was Good and had Good in store for His people, just like He does today.  


Here's something AMAZINGLY EXCITING: For Believers in Jesus Christ, Advent is also the waiting and anticipation of the second coming of Christ. We continue to live in a season of Advent because we know He is once again coming for us, defeating evil, death, and this broken earth once and for all - His Kingdom Come! 

THIS is the reason I have HOPE through My Daughter's death!  Oh, Friend, What else could bring me hope? How else could I go on?  How can one hold their dying child in their arms, kissing her mouth as she takes her last, agonizing breaths?  

There is only one reason why I can keep going; only one reason I have hope: I have hope because I know Jesus came to earth as a precious baby in a broken, human body - leaving His riches and the comforts of Heaven to live on earth among men; living to willingly give Himself as THE sacrifice for all mankind.  


Jesus was born.  Jesus lived.  Jesus died.  Jesus rose from the dead.  
Jesus ascended into heaven.  
JESUS IS COMING AGAIN, reclaiming His  Own, 
and we will live with Him for eternity!
Friends, Death does not bring "eternal sleep".
We won't just "cease to exist" once our hearts stop beating.  
For those who've made Jesus Lord of their life, who have asked forgiveness for their failures and depravity, we can celebrate, continuing a holy state of advent as we await our Precious Savior's return!

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A Very Special Delivery

Advent takes on an even more beautiful meaning for the McLaughlin Family this year. You see, the Father, in His most infinite wisdom,  in His most perfect design, has created a little life that will soon join Our Clan.  He has fulfilled His promises to us in more ways than we could have possibly imagined!

This December, this Month of Reckless Love; Our Ellie Kate's month of life and death - it is in this VERY month, where which God has so graciously decided to bless us with a beautiful, newborn Daughter.  

This incredible gift is one we did not seek out, although we did very much hope for it.  God brought her to us and He did it through Ellie Kate There are so many intricate details, exciting twists and turns, all gloriously and
completely from the Lord!  We cannot wait to share it with you, when the time is right and when this Little One is finally home and in our arms.  We gleefully expect her arrival any day.


Who but GOD could orchestrate such a thrilling gift?!  
Who but GOD could cause all of these things to fall into order,
at this very time and place?!  

  • As we celebrate this Advent, we celebrate the marvelous life of our eldest daughter, Elizabeth Kathleen ('Ellie Kate') McLaughlin, our "Pure and Consecrated" Princess, whom we miss more than the stars in the infinite sky. 

  • This Advent Season, we look back on Ellie's last days; on those severely painful, final moments of her precious, earthly life.  Our words fail, and often times so do our bodies, as we continue to face the reality of it all.  Even in joy, even in Advent, a part of us will always mourn.

  • This Advent Season, we also celebrate Jesus as the "Giver of All Good Things"!  While no one could ever replace our most cherished, green-eyed, curly-haired little girl; the One born in December, who loved to "hop" around her world, "pat-pat" the ones she loved and dance to any and every beat which filled the air . . . God has given us the gift of LIFE in the form of another Little Soul, and the hope of her is a healing balm to us all.  

  • This Advent Season, we celebrate that Christ has come to earth and that Christ will come again!  And in between those miraculous things, we can walk in full assurance that He is FOR us, that He is WITH us, Emmanuel.  

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Month of Reckless Love

This year we adopted the Williams family, made up of mom, daughter (14) and son (8).  Dad is currently in prison and has been for several years.  I had to force the family to choose "wants" and wishes for the Amazon List,as all they really wanted to put down were things such as shoes, socks and underwear.  This family is humble and precious, and they've become very dear to our hearts. Oh, what a joy it has been to see the wishes, needs and wants of this adopted family fulfilled!

IMPORTANT ADDITION:  We've recently  added one teenage girl to the family Wish List. "K" is a 16 year old girl now living with the Williams family, as her father was recently released from prison and is currently unable to assist in any way.  "K"s biological mother is currently unwilling and unable to care for several of her children, including K (who is the eldest). 

 " K" was given the role of raising her younger brothers and sisters while in her mother's home, and she misses her siblings terribly.  Although she doesn't ever want to live in that household again,   "K" does long to talk to her siblings and check on their well-being. Because of this, her Christmas wish consists of a flip phone, or a type of phone she can easily and cheaply communicate with.  "K" doesn't have a job because she is in school full-time and that is tough enough doing on your own, especially without any support from your family.

This Sweet Teen needs clothes mostly, and undergarments and other personal items that a teenage girl might need and want.  Gift cards are the best present for "K" or you can CLICK HERE for her Amazon Wish List.  


Even though the Amazon Wish Lists are almost complete, you can still send gifts to our address - gift cards to grocery stores, gift cards to the mall (the ladies need bras and undergarments), even monetary gifts and pantry items are welcome!  All donations will go directly to the family and to their physical needs.  So far, we've had a couch donated, as well as new mattresses for every one in the family (they currently sleep on the floor or on an old mattress on the floor).  A beautiful bed frame has also been donated and we hope to have new bedding for the family as well, including sheets!  

Can you believe how amazing God is - to move in the hearts of YOU on behalf of this family?!  Because of YOU, they are seeing the Body of Christ, the Love of Christ, the acceptance of Christ, the provision of Christ, and SO MUCH MORE!  
*Please, if you have any questions at all concerning our adopted family this year, or if you have items you might like to donate, feel free to contact me via Facebook or email: tullyryan@hotmail.com.


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"Ellie Kate's Wish"
(Ellie Kate's Helping Hands through NKH Crusaders)

This special fund through NKH Crusaders has been a tremendous blessing to people all over the United States! Several families were nominated by their fellow NKH families and as of this moment,  all but ONE gift has been purchased AND delivered!   From medical needs, such as a bath chair and a special humidifier, to basic toys - all items were things the nominated family  struggled to provide for various reasons. Because of YOU and your generosity, these needs and wants have been fulfilled.  


In addition to needs being met, a very giving Sunday School class at Emmaus Baptist Church of Moore, most generously blessed one of our dearest NKH Families, providing both needs  AND  wants! I wish we could all see the look on that little girl's face when she opens 
that American Girl Doll on Christmas morning - the doll that looks like HER; the doll she's wanted for years, but all her family's extra funds are needed for her brothers, both of whom have NKH.

*If you still feel led to give to an NKH Family this Christmas or to NKH Crusaders on behalf of Ellie Kate or Lucy, please glance at the information included at the end of this incredibly long post;).

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THANK YOU


OHMYGOODNESS, my heart dances at the thought of all the JOY and HAPPINESS brought about by so many of you, and all in Ellie Kate's honor
Friends, We are truly, eternally grateful!

 I have NO doubt Miss Ellie Kate's green eyes are sparkling  as that dazzling, sly grin sweeps across her face, those luxurious brown curls, bouncing up and down, as her deep giggle radiates throughout the heavens - her heart full of delight, peace and cheer; her soul so full of gratitude that it shines from her perfect, heavenly Being.  

And one day - One day, Ellie Kate will 
thank you for recklessly loving the World in her honor. 
One day, you will hear her voice,
as she so merrily dances and shouts in gratitude,
for all that you have done to serve, to sacrifice, to honor, 
to recklessly love, 
. . . the Least of These.  

Matthew 25:40
New International Version
"The King will reply, 'Truly I tell you, 
whatever you did for one of the least of these brothers and sisters of mine, you did for me.'

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Many sweet friends have asked about end-of-year giving, so with that in mind, we share the following information (simply click on the links below):

  • NKH Crusaders - Supporting Research - funds donated go solely toward NKH research at the University of Colorado and Denver Children's Hospital, or the research efforts at Notre Dame University, and/or the new research efforts at Boston Children's Hospital
  • OKC Hope Link the 501c3 God led us to start in 2007,  ministering to families whose children suffer from rare, serious and undiagnosed disorders / outreach to families who have lost children due to disease or illness
  • McLaughlin Family Medical Fund - through Helping Hands Ministries, a 501c3 which pays medical bills directly or reiumburses via medical receipt (seen under 'Ellie Kate Memorial Fund').




Sunday, November 13, 2016

The Month of Reckless Love - Join us in the Celebration!


Oh, My Friends!  You precious people who have followed our story from the beginning (December 2005), those who've jumped in along the way, and those who are brand new to Our Journey in this life of special-needs and medical fragility . . . each of you, ALL of you, just simply MUST KNOW that having you by our side has helped us to get through it all.

It's been difficult this year, in particular, to force myself to sit and write about this upcoming celebration of Ellie Kate's life and the Month of Reckless Love.  OH, how I long to celebrate Our Daughter with you!  And OH, how our hearts continue to hear the call to recklessly love the world around us, calling others to do the same! And yet, grief seeps in, sweeps in, roars in at times - even when you don't want it to.  We will be marking four years without Ellie Kate.  We will be celebrating what would be Ellie's 11th birthday.  My fears this Season are real - since it's been so long, I'm afraid we won't have people commit to these special projects, even though they still love us.  It's so easy to move on with life, and natural to do so.  For us though, life is changed forever and it will never go back to "normal" again.

To us, this Celebration isn't "just" an event or a mere call to action.. This is a life-marker for us, each and every year.  It's our Ebenezer ( ‘Thus far the Lord has helped us’ 1 Samuel 7:12). and with each year, we add a stone representing the outpouring of love specifically shown because of Ellie Kate. With all of this in mind, you can imagine just how important these efforts of reckless love are to us!



For Ellie Kate's Month of Reckless Love this year, we will be doing the following:  

1. Williams Family Christmas Adoption - This is a precious family we have come to know well and they are very dear to our hearts.  The family's needs are great and we had to really push them to list things other than groceries, socks and underwear on their Christmas Wish Lists.

You can provide for the Williams Family in the following ways: 
  • Purchase something directly from the Williams Amazon Wish List - the item will be mailed to our home where we will wrap them and give them to the family
  • Purchase items similar to those on the Amazon Wish List (the family is NOT particular about where their gifts come from), then contact me directly about wrapping and pick-up plans
  • Clothing items for each family member:
    • Mom - size Large, mediums, size 9 shoe
    • 14yo Daughter - size large, mediums, size 9 shoe
  • Give other items needed by the family: 
    • grocery gift cards (Walmart)
    • car (they currently have no vehicle)
    • job for momma (she is currently out of work, but wants to!)
    • basic pantry items and toiletries
    • furniture - mattresses are currently on the floor, and there are no dressers for their belongings
    • laptop or computer for the 14yo daughter that she can use for school (can be new or used)
    • Gift Card Ideas - Hot Topic, Ross, KMart, Shawnee Mall, fast food 
2. "Ellie's Wish" through NKH Crusaders - this special fund set up in Ellie Kate's name, is solely purposed to bless and serve fellow NKH families around the world.  With the help of many of YOU, we recently held a table auction for this fund at the NKH Crusaders Fundraiser in Boston.  Because of some great donations, we were able to do a small Facebook auction to raise money for this as well.  
Since we have not met our goal of $2,000 for Ellie's Wish, we have set up an Amazon list full of needed and requested items from our approved NKH families.  This list allows you to directly mail your item to our NKH family members around the world . . . 

We ask that  all gifts be purchased no later than December 18th

3.  December 4th - Ellie Kate's Birthday; help us celebrate in one of the following ways:
  • Tell someone about Ellie Kate - tell them her story 
  • Tangibly love someone around you who has a disability OR who has a child with a disability.  If you feel comfortable, tell the recipient about your friend, Ellie Kate.
  • Tangibly love someone around you who recently lost a loved one OR who has a loved one who is medically fragile/critically ill.  If you feel comfortable, tell the recipient about your friend, Ellie Kate.  
4.  December 23rd - Ellie Kate's Heaven Day: 
  • Join us in releasing balloons in Ellie Kate's honor, anytime and anywhere.  
  • If possible, take a photo of your balloon release and share it on social media

Tuesday, August 9, 2016

Ellie Kate's Helping Hands - Auction Fundraiser for Fellow NKH Families

The International NKH Medical Conference is coming up this October and we need your help!

Once again, this event will take place in Boston with portions being held at Boston Children's Hospital. Leading experts from around the United States will be in attendance, speaking to parents and caregivers, giving the latest details in treatment and the latest updates in the research.  The Grand Finale of the Conference happens Friday, October 14th, when we gather together for the big NKH Crusaders Fundraiser.

NKH Crusaders was started by my Dear Friend, Kristin Archibald, whose son Thomas has NKH. Since NKH is so rare, and since there are so few individuals affected by it, research is scarce.   Denver Children's and Notre Dame are now partnering and researching together, finding better treatment and maybe one day, they will find a cure for this terrible, terminal disorder.  The main funds for these researchers are fueled by those raised OUTSIDE of their programs, such as those raised by NKH Crusaders.  It can easily be said that research is still being conducted solely because of the efforts of NKH Crusaders and the financial support and efforts of the families affected.  It's a big deal and something we very much support!  If you want to donate to NKH research, you donate to NKH Crusaders, so you can imagine just how important this fundraiser is to ALL of us within the NKH Community.  

Shortly after Ellie Kate's death, a special fund through NKH Crusaders was created in her name.  
The "Ellie Kate Helping Hands Fund" serves our fellow NKH families from around the world.  It is the only fund of it's kind - the only one named after an NKH child, and ohmygoodness, friends - we are beyond proud and are insanely grateful that other NKH kids can receive Ellie Kate's "reckless love" through this special fund! 

"Ellie Kate's Helping Hands" allows families to apply for financial help, which assists with things such as medical equipment and other special items or services that the family isn't able to obtain on their own.  The money for this special fund will be raised this year at the NKH Crusaders Fundraiser in Boston, which will be an auction.  A table will be set up with Ellie Kate's picture and her story, as well as information on this special fund.  We would like to fill the table with beautiful items that will help raise money for this very worth cause!  During the past NKH Crusaders fundraiser, we raised $1,000 through our auction table and this year, we hope to raise at LEAST $2,000 with hopes of assisting around 15 fellow NKH families.  


This is where we need your help . . . 
  • Do you have any special or autographed items you would donate to be auctioned-off, in Ellie's name, at this event?
  • Do you own a small business and have extra new items on hand that you could donate to be auctioned-off?  
  • Do you make or sell jewelry, stationary, soaps, etc that you could donate?
  • Do you have any art, or could you create art, to be auctioned-off for this special fund?  

*Your donated items can be mailed directly to Kristin Archibald before the fundraiser and medical conference.  Mike and I really hope we get to attend and if so, we will take some items with us on the trip.  

*Items valued $200 or higher are eligible for a tax-write off

*If you are interested in helping with this October auction and if you have items you would like to donate for Ellie Kate's Helping Hands fund, please contact me by SEPTEMBER 5th so we can make plans to get your items to Boston in time.  

*Do you have LARGE items that would appeal to a GRAND audience (more than those visiting the table in Boston on October 14th)?  If so, let me know!  We plan to have an online auction later this fall and into December, to help us celebrate "Ellie Kate's Month of Reckless Love"! 

*There will be more opportunities for you to give to this special fund, so be watching the Blog for details!  

*"Ellie Kate's Helping Hands" fund is not associated with our family's account with Helping Hands International.  Helping Hands International houses our family's medical fund  and donations toward us personally.  "Ellie Kate's Helping Hands" is purely associated with NKH Crusaders and is only used in helping our fellow NKH Families around the world.  
The McLaughlin Family receives NO PART OF THE "Ellie Kate Helping Hands" Fund, but rather all of those donations go directly to NKH Crusaders



We are thrilled to see what God will do in and through the auction, and I know there are some very special families He wants to love and care for through this special fund in Ellie Kate's Name!  

I can't wait to hear from YOU about the items you are willing to donate for this fabulous cause - one that is so near and dear to our hearts.  

Don't forget - contact me by SEPTEMBER 5th if you have items to be included.

Thank you, in advance, for serving and loving NKH families just like ours, by donating your items to the NKH Crusaders Fundraising Auction! 








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