Psalm
27:13-14Living Bible (TLB)
13 I am expecting the
Lord to rescue me again, so that once again I will see his goodness to me here in the land of
the living.
14 Don’t be impatient.
Wait for the Lord, and he will come and save you! Be brave, stouthearted, and
courageous. Yes, wait and he will help you.
Clear, blue-green waters upon
the horizon; sugary-sand under our feet; warm sun kissing our skin, with the
taste of the salty sea upon our lips . . .
an absolute dream come-true!
We recently returned from a beautiful trip to Mirimar
Beach, Florida. Our Dear Friends, Jeff
and Bonnie Hinkle, invited us to stay with them in their beautiful home, which
sits right on the ocean! Selfishly, I admit that this was a dream of
mine – I longed to have each of my children enjoy the Florida Gulf as I
did. Miraculously, Lucy was pretty pain-free and able to go with us, so we
marked one of the biggest things off her “Life List” with taking her to the
beach and letting her experience it to the fullest. My cousin Kellyn, an RN and also beloved family
member, went with us as Lucy’s nurse which was a HUGE blessing and
delight!
Lucy absolutely LOVED every part of our time away, even
the riding in the car for over 14hrs! I
can’t fully explain the intense joy I felt watching My Lucy breathe in that
salty air, feeling the warm sand between her toes. She enjoyed grabbing the sand with her hand
and dipping her dainty, pointed toes in the ocean.
Conner and Henry also enjoyed the beach, each with
their own new hobby – for Conner, it’s paddle boarding! We were elated that Conner felt secure and
confident enough to go out on the board alone, evening standing up on his own
accord! He spotted dolphins in the
distance and paddled out to see them up-close.
Conner got to see dolphins swimming under his board which is absolutely
a memory he will forever hold! Boogie
boarding is what Henry chose this trip, and he was in the water from daybreak
to sunset each day (and would have gone out more if we had let him). Henry was made for the water and ran out to
the beach with pure glee. Bowen Jane
also LOVED the water and the sand! She
had no fear whatsoever and immediately crawled straight for the water. Bowen loved splashing in the water and the
salt didn’t bother her one bit! Our “Little
Moana” in her true form, coming back with the darkest tan of all.
It was such a JOY to watch our family relax and enjoy God’s rich creation and I am
truly humbled He saw fit to bring about this trip for us and it was well-worth the sacrifices made in
order to make it a reality.
Lucy’s
all-important, “unicorn/pony party” was the Sunday before we left for Florida
and we were AMAZED and THRILLED at the turnout we received for this
Celebration!
We had approximately 90
people at Lucy’s skating party, so it was good we had the whole place to
ourselves. The owners were gracious and
super accommodating to Lucy and our other fellow wheelchair-bound guests. Truly, we were astonished by
the outpouring of love and support we felt by so many friends there to
celebrate Lucy while she is still with us. Although we didn’t ask for nor expect any gifts, we were blown-away by the
generosity of those who came! There were
so special presents and each is truly an absolute treasure. We will CHERISH this day forever and ever and
ever, Ya’ll.
For
everyone who attended – THANK YOU for taking the time out of
your schedules to come celebrate Our Daughter!
For everyone who served and
assisted that day (Delia, Melissa, Donna, and Julie), THANK YOU for your
precious servant-hearts! For those who wanted to attend but weren’t
able to – please don’t worry one bit!
We know it’s hard to make these events, especially on a Sunday. Donna
Castleberry – the party wouldn’t have come together without YOU. We will always remember and appreciate the
time, energy and creativity you put into it all, making it special for our
entire family, especially for Lucy. I’m
not sure if I will ever get the many thank-you notes out, BUT I want all of you
to know, we are beyond grateful and do not take any part of that special day
for granted. It was so special because
YOU were there!
Now,
for a Lucy Update . . .
While
Lucy did amazingly, surprisingly well on every single portion of the trip, she
crashed when we arrived home. I know she
was exhausted from the excitement and from expelling so much energy while we
were there. She also loved looking out
the window on the long drives, so she didn’t get much sleep to and from our
destination. Even so, we are sad to see
her back to sleeping most of the time and even wanting her bed so often. We get her out, even though she’s so sleepy,
each taking turns with her on the couch, our bed and even on the living room
floor. Ultimately though, Lucy winds up
crying and fussing and I don’t really blame her. It’s pretty loud and boisterous around here,
as we are still living with my parents, and you can’t blame a girl for wanting
her temperpedic mattress and specialized bed, either!
As I posted on FB tonight, Lucy’s kidneys and
bladder aren’t fully functioning and she’s been fighting a bad UTI since we returned from
FL. We decided tonight, the
antibiotic must not be working, so there will be another round of tests and
urine samples and I’m guessing we will just start a different antibiotic.
Sweet LuLu Belle, This Evening
Ellie Kate was home on hospice for three,
agonizing and suffering-filled days, so this long-term decline is totally
different. I don’t know what I would
choose, if I could. Both seem equally as
tortuous as we know Our Daughter is suffering and in pain, and we also KNOW the
realness of Heaven and all that is waiting there for her upon her last breath
here. It’s such a strange place to be –
longing for Ultimate Healing while simultaneously hoping for more time with
Lulie Belle.
I don't know about you, but at times, I get overwhelmed by the mere thought of all the good AND all of the bad, not only in my life but also in this world. The Good and The Bad - life
is made up of both, although it often
feels as though the “bad” wins out.
As Believers
(Followers of Christ), it's hard to see God's goodness when there is so much
obvious darkness around us. I know this is true in my own family as we
look at the outside world - threats of nuclear attacks, church
shootings, terrorism plots, and more, and it’s true as we look inside as well –
with Lucy's declining health, the recent Stage 4 Cancer diagnosis for Mike's
Dad, and what often feels like this giant list of other things, none of which even
possibly seem or feel “GOOD”.
From the outside, I think many would look upon the lot
of The OKC McLaughlins, believing the BAD certainly must outweigh the GOOD, and
although it may feel that way to us sometimes as well, that isn’t the truth.
Now, I’d be lying if I told you there weren't times I
wallow in the, "why me, why us" questions. Child loss, special needs for three children, severe
disability and medically fragility for two girls, years full of hospital stays
and separate among our little family . . . the knowledge we will likely outlive
Lucy, and that Henry is a carrier of the disease; my own mother with medical
fragility, and in being diagnosed with several autoimmune disorders myself . . . even
job changes and losses along the way, financial ups and downs, the heartache
and ever-changing PANDAS rollercoaster, depression diagnoses for four out of
the six of us, marital trouble, and on and on and on . . .
Absolutely,
and no matter how you put it, we have a lot “on our plate”, “so much entrusted
to us”, “many trials and tribulations” and how I see it, we been given so many, CONTINUAL reasons why we MUST have God as Lord of
our lives and why we must cling to Him, always. It gets super complicated and sometimes foggy,
especially on the bad days, and I’m guessing many of you can relate.
Here’s what I absolutely KNOW to be TRUE:
- God created me in
intimate ways, with certain giftings, all for a Specific Purpose. He knows me inside and out, better than
anyone on earth possibly could. He knows
my heart and my thoughts, my limits and my failures, yet He still chooses to love me the same, no matter what I’ve done or will
ever do. I can trust Him because of this Truth.
- God has created
each of my children in intimate ways in which HE designed. He knows every part of their being and
genetic make-up, even how everything works, even when no one else can figure it
out.
I can trust Him because of this Truth.
- ·
NOTHING,
absolutely NO-THING can happen without God’s approval. Satan has no power God does not allow (as
seen in Job). He created me, He knows me, He loves me unconditionally forever, AND He
OVERSEES ALL that is thrown my way. I can surely trust Him because of this!
- No matter how bad
it gets (and ya’ll, it can get bad - as you well know!), God will show me
GOODNESS, just as He promised. I can trust Him because of this Truth,
Friends.
- God always wins, GOOD always wins - for Believers, we can
take comfort in knowing how this life ends . . . with God on the Throne. That certainty can take away my fears, my
questions and my anxieties. Truly, I can trust Him because of This
Truth.
Although I won’t always FEEL like trusting Him, I
can look back on these Truths and CHOOSE to trust Him, shutting
down my own thoughts of fear,anxiety,
hopelessness, and despair.
Today
and everyday, whether you are facing a giant mountain, where
you don’t know how you can possibly survive and you can’t even see through it; or if you are facing a season of hope, fulfillment and happiness, I strongly urge you to CHOOSE TO TRUST Your Father.
That’s
what I’m doing, even now. Why don’t you join me?
Psalm 27:13-14Living Bible (TLB) - I am expecting the Lord to rescue me again, so that once again I will see his goodness to me here in the land of the living. Don’t be impatient. Wait for the Lord, and he will come and save you! Be brave, stouthearted, and courageous. Yes, wait and he will help you.
- PS: Watch for new updates on Ellie Kate's Month of Reckless Love, which starts the first of December, as we celebrate her Sweet Life throughout the month by loving and serving others!
Clear, blue-green waters upon the horizon; sugary-sand under our feet; warm sun kissing our skin, with the taste of the salty sea upon our lips . . .
an absolute dream come-true!
Sweet LuLu Belle, This Evening
Absolutely,
and no matter how you put it, we have a lot “on our plate”, “so much entrusted
to us”, “many trials and tribulations” and how I see it, we been given so many, CONTINUAL reasons why we MUST have God as Lord of
our lives and why we must cling to Him, always. It gets super complicated and sometimes foggy,
especially on the bad days, and I’m guessing many of you can relate.
Psalm 27:13-14Living Bible (TLB) - I am expecting the Lord to rescue me again, so that once again I will see his goodness to me here in the land of the living. Don’t be impatient. Wait for the Lord, and he will come and save you! Be brave, stouthearted, and courageous. Yes, wait and he will help you.
- PS: Watch for new updates on Ellie Kate's Month of Reckless Love, which starts the first of December, as we celebrate her Sweet Life throughout the month by loving and serving others!
Absolutely loved reading this! Absolutely needed to read this. Your words speak truth to my heart and we don’t walk the same path, all who walk know their unique sorrow. This place we live in... the in-between place... is so often painful and dark. Yet you are radiant with the hope of Christ. A sacrifice of praise. And I am so very glad you all had such a wonderful trip in the midst of it. Thank you as always for sharing your journey with us. We can see Jesus in you, Sister.
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