It’s been so long since I’ve shared here on the blog. Life moves so fast, as all of you know, and it’s difficult to keep things updated. I’m sharing today because of an important initiative in our Ellie Kate’s honor. As many of you know, Ellie Kate is our eldest daughter, born with NKH (Non-Ketotic Hyperglycinemia or Glycine Encephalopathy). Ellie Kate died from this genetic disease, shared with Lucy, on December 23, 2012.
EK gave our family a mission – to love, serve and support
families like our own, families who too often are cast aside and ignored by
society, the Church and by the Medical Community as a whole. We’ve been moved to get involved in the
medically fragile and special needs community because of our daughter, starting
OKC Hope Link, Ellie Kate’s Wishes, along with the Wonderfully Made Ministry,
and have been honored to serve in various capacities where these families are
the focus. It's with that in mind that
Ellie Kate’s Butterfly Wishes was born!
Ellie Kate’s Butterfly Wishes expands on our Ellie Kate’s
Wishes within the NKH Community, which has met the needs of NKH families across
the globe over the past several years.
Through NKH Crusaders, Ellie Kate’s Butterfly Wishes will continue to serve
and bless our fellow NKH families, meeting needs that otherwise won’t be cared
for, and will do so all year long!
We simply cannot accomplish this goal or fulfill this mission
without your help. Every dollar, every
dime, helps us provide for the basic needs for our NKH family members who
qualify for assistance. There will be no
program without your financial support.
We humbly ask you to give as you can, in Ellie Kate’s memory and in
honor of medically fragile and special needs children around the world.
Soon, there will be opportunities for businesses to join us
in this effort but for now, we are asking for your help. We are so grateful for the support we’ve
received over the years, and we thank you in advance for the support of Ellie
Kate’s Butterly Wishes in our beloved daughter’s name.
