Tuesday, February 21, 2006

February 21, 2006

Precious Friends,

Ellie Kate is continuing to do well.  She smiled for the first time this weekend, which has brought so much joy to my heart!  It is so nice to see her do things like that.  She is also clasping her hands, reaching for toys, and she even rolled over twice last week!  We are thrilled with the progress she is making, especially since so many kids with NKH deteriorate rather than progress in their physical and mental abilities.

If you would like, you can join us in praying for the following:

1.  That Ellie would gain weight!
2. That she would get on a more regular schedule
3.  That she wouldn't cry as often, and that if she is in pain that would subside
4. Pray for Conner, that he will adjust to having a new sister who requires a lot of attention
5.  Pray for God's provision for our family

Also, as of Friday, February 24th, I will no longer be working at Oklahoma City University.  Ellie's situation requires me to stay at home, so that is what I will be doing from now on.  I'm excited and scared at the same time.  I know it will be an adjustment, so I appreciate your prayers on that.  From now on you can reach me by email at tullyryan@hotmail.com.

I hope you enjoy these most recent pictures of our family.  If you look back at some of the pics from Ellie's earlier hospitalizations, it is quite amazing to see the difference that has occurred!  Of course, we KNOW God has made these changes in her and is bringing her along, healing her in His time.

We love you,
Ryan
http://pg.photos.yahoo.com/ph/mwmcl/album?.dir=/1f65

Sunday, February 12, 2006

February 12, 2006

Recent McLaughlin Pics 

We hope you enjoy these pics of our family.  They are from Christmas up until just last week, including the spaghetti dinner which was hosted by Oklahoma City University.  Thank you for continuing to pray for us.  We love and appreciate each of you!

God is faithful!

Mike, Ryan, Conner, and Ellie Kate 

http://pg.photos.yahoo.com/ph/mwmcl/album?.dir=/dcfd&.src=ph&.tok=phXZnZEB9xrfXVjE

Thursday, February 9, 2006

February 9, 2006

We cannot begin to thank you enough for your love, support and prayers.  Our sincerest thanks to each one who attended the spaghetti dinner last week.  It was an amazing turnout, and we were truly blessed.

This week has been eventful yet again, as we met with the Pediatrician, home care nurses, Geneticists, and the Neurologist here in OKC.  The doctors are all very encouraged at Ellie Kate's current condition.  Not many babies with NKH do very well, so Ellie is astounding doctors in that regard.  Of course, we know it is because God is at work.  We are still praying for complete healing and trusting God to prepare us for the future that lies ahead.  Sometimes the possible outcomes are frightening and disheartening, yet we know God is able to do above and beyond what we can imagine!

Today Conner was diagnosed with Rotavirus - something that is common among little ones but is very contagious.  Because it is so contagious, and because Ellie Kate's immune system is already compromised, we must keep her away from Conner for 4-5 days (and from me since I have been directly exposed to the virus).  So, once again our family is separated.

Please pray for healing over our family.  God is faithful, and I know He does indeed have a purpose for all of this, although it is hard to understand that at times.  We love you all and appreciate you!

Friday, February 3, 2006

February 3, 2006

First of all, on behalf of Ryan, let me thank each and everyone of you that became apart of the spaghetti dinner.  It was more fun than I could have imagined.  It was a blessing to see so many people.

Ellie Kate will get evaluated by a geneticist and neurologist on Monday.  From that evaluation and the subsequent evaluations by those doctors, we will begin to develop a treatment plan for Ellie Kate.  Her medication will be adjusted, our doctors visits will be determined and probably what types of procedures and tests will be needed.

When we brought Ellie Kate home from Houston, we were told to watch for some things that were associated with her disorder.  We are pleased to report that we have not seen any of the red-flags.  No seizures, no major complications (outside of RSV, which was unrelated) and no major-developmental issues.  We know that we are not out of the woods yet but we are encouraged as each day passes.

Ellie weighs over 9 pounds and is beginning to hold her head up on her own.  And I forgot to mention that she is extremely feisty.

She has me 100% wrapped around her finger.

-MFM

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